With a child who has a rare disease and needs expensive medication every day, father Geoffrey Toi tells Joel Chua why taking things one day at a time is the best way to cope.
New: You can now listen to articles.
This audio is generated by an AI tool.
When a pin prick to draw blood for their newborn son didn’t stop bleeding for 36 hours, parents Geoffrey Toi and Amelia Teng knew something was very wrong with their child. At six months old, Christopher was diagnosed with Bile Acid Synthesis Disorder – and he is the only patient in Singapore with this rare disease.
Today, the precocious 8-year-old needs daily medication, and at first glance, still behaves like any other child.
In this episode, Geoffrey tells Joel Chua how his family's hard-fought journey to secure lifelong support for Christopher has been...