A Letter to Myself Podcast: Father of a child with rare disease - The pain and worry has been ‘all worth it’

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With a child who has a rare disease and needs expensive medication every day, father Geoffrey Toi tells Joel Chua why taking things one day at a time is the best way to cope. 

Be inspired by the person behind the personality on "A Letter to Myself", as newsmakers, thought leaders, and everyday people reveal the most valuable lessons they've learned through life.

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When a pin prick to draw blood for their newborn son didn’t stop bleeding for 36 hours, parents Geoffrey Toi and Amelia Teng knew something was very wrong with their child. At six months old, Christopher was diagnosed with Bile Acid Synthesis Disorder – and he is the only patient in Singapore with this rare disease.

Today, the precocious 8-year-old needs daily medication, and at first glance, still behaves like any other child.  

In this episode, Geoffrey tells Joel Chua how his family's hard-fought journey to secure lifelong support for Christopher has been...

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